"Each friend represents a world in us, a world possibly not born until they arrive." Anaïs Nin

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Monday, May 11, 2015

Princess Ewauna and the Legend of Face Rock (photo by Gary Edmiston)

I love living in the small coastal community of Bandon. My Fabulous Husband was up very early one morning to catch the moon over Face Rock before it dipped into the sea. I love how he also caught the reflection of the moon along the shoreline. Below the photo is the Legend of Face Rock, as found on the Coastal Muse page.

Face Rock, Bandon, Oregon Photo by Gary Edmiston

"The Legend of Face Rock"

Many, many years ago, the legend begins from the Nah-So-Mah tribe. Chief Siskiyou, from the far mountains, traveled with his family and clansmen to the coast to trade with the four tribes who lived by the great sea they called Wecoma.

In his honor, the four chiefs planned the greatest potlatch in all memory. They roasted bear, salmon, elk and deer. Huge quantities of clams and mussels were steamed. Cedar bark trays were filled with honey and red and blue huckleberries.
The local tribes were all in great fear of Seatka, the evil spirit who lived in the sea. It was feared that Seatka might cause trouble for the people and their guest. Armed warriors stood guard on the bluff. However Princess Ewauna, the beautiful daughter of Chief Siskiyou, and those in her tribe who lived in the mountains were not afraid.

Ewauna was enchanted by the sea. After the feast when people were sleeping, she slipped away from camp, carrying a basket with her cat and kittens nestled inside, followed by her faithful dog, Komax. She wandered down to the ocean where she danced and played with delight. 

The moon was full and Wecoma ran silver. Ewauna, who did not fear Seatka, swam in the sea, farther and farther from shore. Komax barked a warning but it was too late. The evil Seatka had captured the beautiful princess. The dog, carrying the basket of kittens, swam to his mistress and buried his teeth in the hand of Seatka. Howling, he shook off the dog and threw the cats into the sea. Seatka tried to make Ewauna look into his eyes, but she refused to look away from the great round moon.

When her father awoke, he raised the alarm. Everyone rushed to the shore of Wecoma. There they saw the lovely face of Ewauna gazing skyward. Her dog was on the beach howling for the princess and the cat and kittens were in the sea to the west. In time, they all turned to stone, frozen forever as they were that long ago dawn.


Saturday, May 9, 2015

A Mother's Day Note from my Mother

I found this in my jewelry armoire today from 8 years ago. My mother's words still deeply touch me. 

My Mother

I am incredibly grateful for the woman who selflessly allowed me to be adopted into another family.

My mother adopted me when I was 11 months old. She not only was my mother, she was my best friend, and I miss her dearly. It's been 17 months since she transitioned from this earth, but I find the grief still too fresh. She gave me an incredible life filled with travel, hiking, camping and fishing and a myriad of other experiences. She was smart, funny, kind and gentle. 

But more than all of that, she loved me unconditionally. 

I hope I am like her when I grow up. 

Mom (Mary Evans) and me, summer 2012, Oregon Coast 

My mother at the Trees of Mystery,

Beach art by Gary for Mother's Day, 2015

Friday, May 8, 2015

Spiritual Maturity: What is it?

This little gem showed up in an email this week, and it is an excellent perspective of what Spiritual Maturity really is:
Being Spiritually Mature
Spiritual maturity isn’t measured by how long you’ve been a Christian, or how much you know, or how often you go to church. Spiritual maturity is measured by the way you treat other people. It’s measured by the love you allow to operate through you.
First Corinthians 13 tells us about the characteristics of love. When we are walking in love, we treat other people with courtesy and respect. Are you kind to the person at the checkout counter that may be moving too slowly? Are you gentle when you are driving down the highway and someone cuts you off? Are you patient with your family and coworkers? These are all ways we show love.
Scripture also tells us that love is patient. It is kind. It does not envy; it is not proud. It is not rude. Love is not easily angered, and it keeps no record of wrongs. Love never fails. Notice that these characteristics don’t have anything to do with feelings. That’s because love is a choice. You can choose to walk in love toward people even when you don’t feel like it — and that’s what being spiritually mature is all about!
Father, thank You for loving me so that I can show love to others. Teach me to be patient and kind and treat others the way You always treat me in Jesus’ name. Amen.
— Joel & Victoria Osteen

Saturday, May 2, 2015

Friday, May 1, 2015

Happy National Interpreter's Day

Here's to all the interpreters who provide access to language! I'd like to include CART and Captioning Providers, as well! 
Text Captioning is language, too! #TextInterpreting #WithCaptions

Thursday, April 2, 2015

"Can We Create New Sense for Humans" David Eagleman TedTalk

I love Facebook. My friends post and share some pretty amazing things from memes and stories to the latest in technology and science.

 Sherri posted this on my timeline. I admit I didn't watch the video, but I DID read the interactive transcript since I couldn't find the caption button. Will this be the way the blind will see and the deaf will hear in the future?

"Can We Create New Sense for Humans" TED2015
"David Eagleman
David Eagleman decodes the mysteries of the tangled web of neurons and electricity that make our minds tick — and also make us human."


Isn't this fascinating and fabulous?

Tuesday, March 31, 2015

My Speech at "Focus on People Awards" and our interviews

Below are 2 videos from the Oticon "Focus on People Awards" 2014. The 1st video is my speech. I want to thank Teresa Russ for providing the captions for my video. Click the CC button for the captions. If you need captioning added to your videos, I highly recommend Teresa. The 2nd video shows the interviews of each of us discussing our thoughts regarding role models.


Teresa Russ, CSR, CRI
Certified Court Reporter
CART/Provider Captioner
(For the Deaf and Hard-of-Hearing)

Oticon's Focus on People Award 
2014 Award Recipient Joyce Edmiston 
Oticon Speech by Joyce Edmiston 
Thank you, Maria.   
I want to thank Oticon, and I want to thank the staff at Hearing and Hearing Aid Services, and, especially, Lisa - excuse me. 
Especially, Cindy Lipman, who was very generous with her time in fitting me with my brand new Oticon Alta Hearing Aids.  They are fabulous.   
And I would like to thank my fabulous husband.  I would not be here today without his support.   
When I told him that I was thinking about writing a blog, he said you should, and when Speak Up Librarian, Sarah WegleyOticon's former advocate of the year award winner in 2011, when she told me that she had nominated me for this award, I was speechless and humbled.   
It was Sarah's blog actually that prompted me to look online for other people who were talking about their own hearing losses, experiences, and there weren't very many out there.  Though we’re a small group, we seem to have a very large readership.   
Through my blog, I have over 47 countries, 47 countries reaching out, looking for others like us and reading our stories.  We're not alone.   
When I started blogging, I admit it was totally selfish.  It was my therapy, but, eventually, people started writing to me and saying, you know, I had this experience, and I had that experience; so I opened my blog to guest writers, and I welcome anybody to join their voice in writing what they feel that's on their heart because, you see, the blog isn't just mine.  It's ours.   
We are the masters of our circumstances, and as masters of our circumstances, we can bring about awareness, and we can make positive changes for our world today, not just for us, but for future generations, and I am very positive that we have the bright shining light of our future with the help of Oticon, and the wonderful generous support that they offer -- the technology, the doctors, the audiologists, the technical geniuses behind the community, and the company, and I thank you.   
Once again congratulations.  Take your award.  Thank you.  You can take this.  

Saturday, March 28, 2015

Glenn's Advice Regarding Meniere's Disease and Brain Fog

If you're living with Meniere's Disease and looking for practical advice to help alleviate some of its symptoms, I highly recommend you hop over to Glenn's page and check out what helps him. A few suggestions over there may help you, too.


Wednesday, March 25, 2015

Captioning Campaign for New York Times A SUCCESS!!

Lauren Storck of CCAC Collaborative for Communication Access Via Captioning  spearheaded a campaign this week to encourage The New York Times to provide quality captioning for their videos. Here is her write up:

I'm pleased to share with you this follow up from Lauren celebrating SUCCESS!! We can make positive changes when we join our voices together to be seen and "heard".


Thursday, March 12, 2015

Teaching the World to Listen with Their Eyes

I was contacted by News Reporter, Amy Moss Strong recently for an interview for the Coos Bay  World and Bandon Western World newspapers in the series under "Neighbors". So often, we don't know who are neighbors are, or what their story is. Everyone has a story. I'm looking forward to the weekly series to learn about the people here in my community and getting to know them a little better.

A short version ran in the Coos Bay world on Monday, and a full story ran in our local Bandon Western World today.  The full story is linked below.

Amy came over and we spent 3 hours together. It was a lovely visit. My story ran in our local paper today on the front page. You can read about it here:

Friday, March 6, 2015

Interviews With Incredible Women ... interview with Joyce Edmiston

Ann Parmer has an amazing, uplifting project that highlights inspiring women.
Thank you, Anne Parmer for the honor of being among such Incredible Women with your project of Interviews with Incredible Women! And thank you, my Incredible friend, Denise VanBriggle for suggesting me.


Sunday, March 1, 2015

"Return to Listen and Talk" #WithCaptions

My friend, Cheri Hyatt Perazzoli (Let's Loop Seattle) posted this video along with these words:

"Sound Possibilities..at School.. on the Job..in the Community Universal; induction loop technology ( hearing loop ) levels the playing field. As the ADA turns 25 this year; isn't it time we break down barriers for people who have hearing loss by making our places of work, transportation, school, government and community accessible to people with hearing loss? Hearing loops are the wheelchair ramp for hearing aids and cochlear implants. Let's Loop Seattle. Let's Loop America! Get in the Hearing Loop!"

"Return to Listen and Talk" #WithCaptions

Monday, February 23, 2015

"Thank You" ASL Music Video #WithCaptions

Here is a nice little video with ASL interpretation by Jason Listman, Dido's "Thank You" #WithCaptions:


Monday, February 16, 2015

Far From the Tree with Hearing Loss Peeps by Nancy M. Williams

Nancy Williams breaks the stereotypical myth that people with hearing loss or deafness can't enjoy music. She shares her passion for music and encourages us to not set limits when it comes to following our passion. Thank you, Nancy, for taking time to guest post and sharing what's on your heart.

Far From the Tree with Hearing Loss Peeps 

By Nancy M. Williams 

I’m going down to Missouri this summer to be with my people. 

St. Louis, Missouri, to be exact, during the last week of June.  This summer will mark my four-year anniversary of going public with my hearing loss. One way I will celebrate my newfound openness is to attend the Hearing Loss Association of America’s (HLAA) convention to be held in St. Louis 

This year I won’t be presenting.  (In 2014, I deeply enjoyed delivering my workshop on Claiming Your Passion…Despite Hearing Loss, and I look forward to presenting again in the future.) I’m attending the convention with an entirely different focus: to savor that unparalleled feeling of being in a room filled with people who also have hearing loss, who also wear hearing aids and cochlear implants, who also look down at people’s lips during conversation to speech-read, who also need the CART screen to catch all the words.  This year I’m going to the convention to hang out with my peeps. 

Social scientists have long advocated that people with a different way of experiencing the world, whether emotionally or physically, feel a sense of communion and validation when they spend time with others who have the same perspective. In his brilliant book, Far From the Tree, Andrew Solomon describes a series of what he calls horizontal communities, groups with similar elemental characteristics, such as people with autism, people who are gay, and of course, people who are deaf. These horizontal groups cut across established and familiar communities of extended family, neighborhoods, or college friends. Take that apple who has fallen far from the tree of her upbringing: it is there, in the horizontal community, that she feels she has finally come home. 

Far From the Tree’s chapter on deafness—I loved the way Andrew Solomon describes people speaking in sign language, “some move their hands and faces precisely, some extravagantly, some playfully, and some with great solemnity”is worth the price of the book alone. Although I currently have a moderate to severe hearing loss, as opposed to being profoundly deaf, and although I don’t eschew the company of people with so-called normal audiograms, I found that this chapter gave shape to feelings I experienced at the 2014 HLAA convention.  I felt calmness, certainty with my purpose in life, even lightness within.  

When I spend time with the hearing loss community, I can be myself down to my core. Here at last is a group of people who understands how it feels to miss words. Here is a group of people willing to repeat the punch line and enunciate their speechHere is a group who sees me first as a pianist, writer, mother and wife, and secondarily as a person with hearing loss. 

When I’m at the 2015 HLAA convention, of course I will miss my husband and our two beloved children. Yet I can’t wait to feel the excitement of the opening night, attend the workshops to learn more about the latest hearing aid technology, and hang out with my new friends I hope to see you there. 

Nancy M. Williams is a leading hearing loss advocate who speaks throughout North America. She is the founding editor of Grand Piano Passion™, an online magazine that explores living and making music with hearing loss. She is also a Board Member of the Hearing Health Foundation, who is researching a cure for hearing loss and tinnitus. Follow her on Twitter at @nmwilliamshear or learn more about booking her as a speaker at nancymwilliams.com